Just after Christmas in 1997, I think it was actually in January of 1998,
Jo and I went to the mall. At this time she was able to eat pureed
food and could sit up and ride in the car and wheelchair. She also had
periods where she would talk in whispers or not at all. This day she
was not talking. She loved to go riding. She never did like
being still for too long. We would ride in the car for long periods of
time to calm her.
This particular day we were at the mall just
visiting shops and wheeling around. We stopped into a music store and
I was going to make a slow circuit around the edge. As we passed the
CD's on the wall Jo reached to one. It was the Star Wars boxed
set of movie soundtracks. Jo had never liked science fiction
and was not a real big fan of movies - she could rarely sit still through a
whole movie - so the meaning of this gesture was obvious. I am a huge
sci-fi fan, and Jo knew this. She was pointing to this CD because she
wanted to get it for me.
Of all that has happened since we discovered her
illness, this will stand out most in my memory. After all she had been
through and all of the hardships she was enduring, she was thinking of
someone other than herself.
She most always thought of others first. I
can remember several times that she would be feeling bad (throwing up or
something) and she would
apologize for "putting me though it."
Going to Grease
On March 27, 1998 Jolynne and I had our last "date". Just
Jo and me. We went to watch the 25th anniversary of Grease
at the movie theatre. She and I went together, she in her
wheelchair. Jo enjoyed the movie greatly. Whenever Jo thought
something was funny she not only laughed but she clapped as well. She
couldn't make the same laughing sounds that I remembered as "her
laugh" but she sure did clap a lot. This is probably the last
"happy" moments she has had that I have seen.
I did not witness this but she did laugh a lot (or make laughing sounds)
when our daughter Kayleigh decided to perform for her mother. She got
on top of a bale of hay on our back porch and danced. Jolynne could
see her through the sliding glass door and when Kayleigh "shook her
booty", Jo laughed and laughed. This was after Jo had been bed
ridden for awhile and could not move very easily.
Picture of Kayleigh dancing
Picture of Jolynne laughing